Thank you all for your prayers and love. We have been home for 2 weeks now and Gus is back to his normal routine – the busy life of a three year old! We were able to go home the very next day after my last post. I knew if we didn’t get out on Friday, we would be there all weekend. I asked our nurse to talk to the doctors during rounds and tell them I was very comfortable with giving him his last 3 doses of IV antibiotics at home. His cultures had come back positive for ANOTHER virus. This one is called androvirus and is another very “common cold” type virus. It is not dangerous at all to normal kids and most adults don’t even register any symptoms. It is however highly contagious and is extremely dangerous to neutropenic kids (those kids with absolutely no counts and no immune system). So for the sake of the other kids staying in Aflac, we needed to go. Fine by me, we’ll be gone in 2 hours Doctors were very comfortable with me administering his remaining antibiotics and he was looking much better. So we made it home and my sister Haley and the kids stayed through the weekend to help us get back settled at home. She was our angel making us yummy meals and doing piles of laundry. Thanks so much to her and to our friend Jane who took care of Audrey during the days while we were in the hospital. Gus is still on antibiotics and will continue for the next 2 weeks.
He is still on hold for chemo until his platelets come up. Dr. Mazewski has also said she did not think school was a good idea for the next three months. Flu season is upon us and after this last scare, she suggests limited contact with the outside world.
Fortunately Gus was well enough for us to make it to Family Camp at Camp Sunshine. Camp Sunshine offers a weekend camping experience for families with pediatric cancer. It was our first camp experience and it was wonderful. It is truly amazing how this organization offers such a special experience to families going through these rough times. We were able to meet new families and spend time with those we already knew. They offer a wide variety of activities for the whole family. We tried as many as we could, but Gus is still not feeling 100% and both of the kids schedules were very off (going to bed late, getting up early, sleeping in a strange place, etc.). We made the most of it though and it was great to just get away for the weekend and spend quality time as a family. We got some fishing in, arts and crafts, and drumming in the coolest tree house we have ever seen. Follow the link for pictures from camp. Camp Sunshine Pictures!
Tony and I were also happy to celebrate our 5th wedding anniversary that weekend. We were married on our 5th anniversary of the day we met, so we’ve actually been together 10 years. It would have been nice to have a romantic dinner, but money is very tight, so we were happy to spend it with our 2 love bugs. We have been through so many life-altering changes in the past 3 years. Our life has been EXTREMELY stressful since Gus was diagnosed and it is easy to see why so many marriages don’t make it through something like this. I am thrilled to say that it is quite the opposite for us. We have grown so much closer over the past 15 months and our love is that much deeper too. We lean on each other every day. We laugh and smile about weird things that no one would think funny unless they had endured what we have endured. I am a strong mother for Gus and Audrey because I have Tony and he remains strong for our family because he has me. We make a great team and beautiful children. We are truly blessed to have each other.
So coming up we have Halloween, I’m still trying to convince Gus to wear a costume. He is extremely stubborn about certain things and this is one of them. We also have little Lady Audrey’s first birthday next week. I cannot believe its been a year already. Time flies when you are fighting cancer!
Thanks again for all your prayers and support. A special thanks to Sherry DeMond for the gift cards that could not have arrived at a better time and were a huge help. Also a big thank you to Suzie Ruddle for making us delicious frozen meals. All the food has been a huge help and we appreciate it so much.
Much love to all, I hope everyone has a fun Halloween,